Resources

AARP provides an extensive collection of resources, including articles and state-by-state databases, for caregivers. The website includes sections on caregiving basics, care at home, health, financial and legal issues, life balance, online communities, local resources, and shared stories.

The AACR is the oldest and largest scientific organization in the world focused on every aspect of high-quality, innovative cancer research. The mission of the AACR is to prevent and cure cancer through research, education, communication, and collaboration.

The nonprofit, nonpartisan advocacy affiliate of the American Cancer Society supports evidence-based policy and legislative solutions designed to eliminate cancer as a major health problem. ACSCAN works to encourage elected officials and candidates to make cancer a top national priority.

African Americans have poor health outcomes on nearly every disease index.  While access to health insurance and socioeconomic status play a significant part in these health disparities, there is also a general lack of awareness about preventive steps to better our health. Black Health Matters provides information about health and well-being from a service-oriented perspective–with lots of solutions and tips.

The Black Women’s Health Imperative aims to lead the effort to solve the most pressing health issues that affect black women and girls in the U.S. Their approach includes health research, advocating for best government policy, and programs and initiatives focused on health.

The CLRC provides information and education about cancer-related legal issues to the public through its national telephone assistance line. The CLRC also conducts national education and outreach programs for community groups, employers and healthcare professionals and is actively involved in community activities to raise public awareness of cancer-related legal and public policy issues.

CancerCare is the leading national organization providing free professional support services and information to help people manage the emotional, practical, and financial challenges of cancer. Services include counseling and support groups held over the phone, online, and in person, educational workshops, publications, and financial and copayment assistance.

FORCE aims to improve the lives of individuals and families affected by hereditary breast, ovarian, and related cancer, and to provide people with resources to determine whether they are at high risk for breast, ovarian, and related cancer due to genetic predisposition, family history, or other factors.

The Indian American Cancer Network is a nonprofit organization that aims to help people of South Asian descent affected by cancer. The IACAN network offers various services to help patients and caregivers with such issues as language barriers or dietary differences, and to assist through the recovery process.

The Intercultural Cancer Council promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.

ICAN provides advocates to help cancer patients navigate through all aspects of treatment, as well as advocating and lobbying for patients through legislatures and government agencies in the United States and in more than 50 countries to date.

The National Native Network works to enhance the quality and performance of public health systems to reduce commercial tobacco-related illnesses and cancer disparities among American Indian and Alaska Native populations.

Latinas Contra Cancer focuses on cancer prevention, detection, screening, and education efforts in the Latino community. Goals include increasing access to quality care, working to decrease mortality rates, and improving the quality of the healthcare experience. The website is in English and Spanish.

The National Cancer Institute offers a collection of resources for many different members of the cancer community: patients, caregivers, health professionals, researchers, advocates and policy makers, international partners, and industry.

NCCS’s mission is to advocate for quality cancer care for all people touched by cancer. Founded by and for cancer survivors, NCCS created the widely accepted definition of survivorship and defines someone as a cancer survivor from the time of diagnosis and for the balance of life.

NCCN is an alliance of leading cancer centers devoted to patient care, research, and education, with the goal of improving the quality, effectiveness, and efficiency of cancer care so that patients can live better lives.

The mission of the National LGBT Cancer Network is to improve the lives of LGBT people with cancer and educate those at risk of getting cancer. They educate the LGBT community, train healthcare providers, and advocate for LGBT inclusion in national cancer organizations, research, and the media.

The National LGBT Cancer Project is a support and advocacy organization focusing on the needs of LGBT cancer patients and survivors. Their services include peer-to-peer support, patient navigation, education, and advocacy.

The NACR seeks to reduce Native American cancer incidence and mortality, and to increase survival from cancer among Native Americans, through education, prevention, and screening.

The Neuroendocrine Cancer Awareness Network (NCAN) is a nonprofit organization dedicated to raising awareness of neuroendocrine cancer, providing support for caregivers and people with neuroendocrine tumors (NETs), and funding for NET cancer research.

Nueva Vida, based in the mid-Atlantic region, partners with academic organizations to provide support through outreach and education, patient navigation, and mental health and survivorship skills, for Latino families facing cancer. The website is in English and Spanish.

PanCAN is dedicated to fighting pancreatic cancer on all fronts: research, clinical initiatives, patient services, and advocacy. Programs include a Clinical Trial Finder and Know Your Tumor® genetic testing. With some resources in Spanish.

The Patient Advocate Foundation is a national nonprofit organization which provides professional case management services to Americans with chronic, life threatening, and debilitating illnesses. They work with insurers, employers, and/or creditors to resolve insurance, job retention, and/or debt crisis matters related to healthcare.

PatientsLikeMe is a free website where people can share their health data to track their progress, help others, and change medicine for good.

Project Purple is a Connecticut-based 501(c)(3) nonprofit organization created to raise awareness, support patients and families affected by the disease, and fund research efforts to defeat pancreatic cancer.

Smart Patients is an online community for patients and families affected by a variety of illnesses. The pancreatic cancer forum includes discussions of treatments, ways to mitigate side effects, and other topics important to patients and caregivers.

A worldwide network of Whipple patients and caregivers who offer support and hope and work together to support the needs of the Whipple patient before, during, and after surgery, using both the Facebook Whipple Surgery Survivor Group and the website to share Whipple-related information.

The World Pancreatic Cancer Coalition is a collaborative effort of pancreatic cancer advocacy nonprofit groups. Through global collaboration, members are able to raise awareness of pancreatic cancer and strengthen the individual efforts of all member organizations.