Advocacy
80 articles
Nurse Navigators Provide a Guide for the Pancreatic Cancer Journey
Are you overwhelmed by your pancreatic cancer diagnosis? Patricia Gambino explains how a nurse navigator can help you through the treatment process.
“She Saved My Life”
Ronda became an advocate after her Whipple surgery, but credits neuroendocrine cancer advocate Maryann with saving her life by insisting on follow-up.
I Didn’t Expect to Be Doing This
Sheila Sky Kasselman, a long-term survivor of pancreatic cancer, started a foundation to help others after recovering from Whipple surgery.
I Thought it Was a Stomach Bug
Robert Gamble thought he had a stomach bug, but it turned out to be pancreatic cancer. He needed surgery and chemotherapy.
Resources
Our extensive collection of web-based and other resources for patients, families, and caregivers provides easy access to information on a wide variety of subjects related to pancreatic cancer. The resources are reviewed and updated periodically to ensure they are current.
Advocacy Organizations Make a Difference
Learn more about advocacy organizations the Griffith Family Foundation, Rolfe Foundation, and Scott Eli Jackson Foundation., and how each helps pancreatic cancer patients and families.
At the Table: Taking Care During the COVID-19 Pandemic
Pancreatic cancer survivors discuss the different ways they are being careful to avoid catching COVID-19 during the pandemic.
Looking Back and Looking Forward
For Let’s Win’s 10th anniversary, long-term survivor Roberta Luna looks back at the changes and forward to future gains.
How to Communicate with Medical Experts When You’re the Caregiver
Nurse navigator Patricia Gambino and social worker Lauren Shaffer share communication strategies for caregivers working with medical experts.
Cancer-Free and Running Strong
After her Whipple procedure, Janice Canfield is making the most of her time, working, running races, and traveling the world.
The Whys and Hows of Pancreatic Enzyme Replacement Therapy
Pancreatic enzyme replacement therapy (PERT), is an important part of treatment that is often not properly utilized, but a new tool can help.
Bold, Aggressive, Decisive, and Rapid
Long-term survivor Steven Lewis credits the support of family for getting him through aggressive treatment when his pancreatic cancer came back.
No Time to Wait: UK Pancreatic Cancer Patients Struggle with Treatment and Diagnostic Delays
Peter De Rosa of Pancreatic Cancer UK provides an update on how the COVID-19 pandemic has impacted pancreatic cancer patients in the UK.
International Advocacy Efforts Help Pancreatic Cancer Patients
#PurpleOur World, Fondazione Nadia Valsecchi, and The John E. Sabga Foundation for Pancreatic Cancer provide different types of advocacy for patients and caregivers from around the world.
Drama Helps Playwright Tackle Pancreatic Cancer Loss
Playwright Isobel Barrett has turned the tragic loss of her husband into a moving play that is also a tool for pancreatic cancer advocacy.