Advocacy
80 articles
Cachexia Research Gaining Momentum
Why do pancreatic cancer patients lose weight even if they are eating well? Dr. Teresa Zimmers explains the syndrome called cachexia.
Patient-Focused Research to Better Understand Pancreatic Cancer
Dr. Diane Simeone stresses the importance of research and clinical trials to get better results for pancreatic cancer patients.
Younger Brother’s Pancreatic Cancer Leads to Regular Screening for his Oldest Brother
When Scott Nelson was diagnosed with pancreatic cancer, oldest brother Steve began regular screening, which lead to his early diagnosis.
The Value of Molecular Profiling and Genetic Testing
Gina Harrison underwent molecular profiling of her pancreatic tumor, which led her to a clinical trial. Genetic testing showed her BRCA1 mutation was random.
Working Hard to Beat Pancreatic Cancer
Sandy Robis underwent a full pancreatectomy and chemotherapy to help her beat pancreatic cancer. Now she helps support other patients.
Living with Pancreatic Cancer as a Long-Term Survivor
Roberta Luna has been fighting pancreatic cancer since 2002, but the disease has been part of her life for much longer. Read about her battle.
Picking the Right Team
Brigitte Régnier found a treatment team that was using an unusual approach of giving chemoradiation before surgery for pancreatic cancer.
Changing Course Midstream
Barbara Green wasn’t happy with her doctors, so she took the advice of her support group, was an advocate for herself, and changed doctors.
Twice Facing Pancreatic Cancer
Steven Lewis has faced down pancreatic cancer twice–first with a Whipple, chemo and radiation; then with liver surgery for metastasis.
Education, Clinical Trials, and Advocacy
Pat Theobald lost her mother to pancreatic cancer, so when she received the same diagnosis she knew to start treatment with a clinical trial.
A Routine Physical Saved My Life
John Moisan’s doctor noticed he had lost weight, and insisted he get an abdominal CT scan. They found a pancreatic tumor and he had a pancreatectomy.
Advocating For My Own Future
Kay Kays is a long-term survivor of pancreatic cancer who has learned to advocate for herself to get the treatments she needs.
Long-Term Survival After Grueling Radiation Treatment
Long-term pancreatic cancer survivor Steven Yedwabnick endured a long protocol of radiation and chemotherapy after a Whipple surgery.
Going Outside Standard Protocol Changed Everything
Sharon Rockmaker was determined to have a Whipple procedure despite having stage IV pancreatic cancer, and she finally did.
Roberta Luna Gets Real about Pancreatic Cancer
Long-term survivor Roberta Luna has channeled her passion for pancreatic cancer advocacy into a weekly podcast featuring patients, advocacy, medical professionals and more.