Advocacy
80 articles
Cachexia Research Gaining Momentum
Why do pancreatic cancer patients lose weight even if they are eating well? Dr. Teresa Zimmers explains the syndrome called cachexia.
Patient-Focused Research to Better Understand Pancreatic Cancer
Dr. Diane Simeone stresses the importance of research and clinical trials to get better results for pancreatic cancer patients.
Education, Clinical Trials, and Advocacy
Pat Theobald lost her mother to pancreatic cancer, so when she received the same diagnosis she knew to start treatment with a clinical trial.
Working Hard to Beat Pancreatic Cancer
Sandy Robis underwent a full pancreatectomy and chemotherapy to help her beat pancreatic cancer. Now she helps support other patients.
Roberta Luna Gets Real about Pancreatic Cancer
Long-term survivor Roberta Luna has channeled her passion for pancreatic cancer advocacy into a weekly podcast featuring patients, advocacy, medical professionals and more.
Catching Up With Survivors
How are some of our long-term survivors doing? Roberta Luna, Steven Merlin, Camille Moses, Ed Duncan, and Laurie MacCaskill tell all.
Resources
Our extensive collection of web-based and other resources for patients, families, and caregivers provides easy access to information on a wide variety of subjects related to pancreatic cancer. The resources are reviewed and updated periodically to ensure they are current.
Younger Brother’s Pancreatic Cancer Leads to Regular Screening for his Oldest Brother
When Scott Nelson was diagnosed with pancreatic cancer, oldest brother Steve began regular screening, which lead to his early diagnosis.
Advocacy Organizations Make a Difference
Learn more about advocacy organizations the Griffith Family Foundation, Rolfe Foundation, and Scott Eli Jackson Foundation., and how each helps pancreatic cancer patients and families.
The Association of Community Cancer Centers (ACCC) Fights for Equitable Cancer Care
The Association of Community Cancer Centers helps local oncologists access the latest treatment and care information, says Dr. Leigh Boehmer.
International Advocacy Efforts Help Pancreatic Cancer Patients
#PurpleOur World, Fondazione Nadia Valsecchi, and The John E. Sabga Foundation for Pancreatic Cancer provide different types of advocacy for patients and caregivers from around the world.
Meet the World Pancreatic Cancer Coalition
The World Pancreatic Cancer Coalition shows there is power when advocacy groups join together for the cause: World Pancreatic Cancer Day.
A Routine Physical Saved My Life
John Moisan’s doctor noticed he had lost weight, and insisted he get an abdominal CT scan. They found a pancreatic tumor and he had a pancreatectomy.
Long-Term Survival After Grueling Radiation Treatment
Long-term pancreatic cancer survivor Steven Yedwabnick endured a long protocol of radiation and chemotherapy after a Whipple surgery.
Pancreatic Cancer Organizations Join in Mourning Aretha Franklin
Let’s Win and the Elvin Howard, Sr. Pancreatic Cancer Advocacy Foundation join in mourning Aretha Franklin, and to raise awareness of pancreatic cancer.