Genetic Mutations and Family History

Genetic testing is now the standard care for pancreatic cancer. Finding a mutation can impact treatment choices and the health of other family members. These pancreatic cancer survivors offer their perspective and best practices for living with genetic mutations.

44 Articles

Rich and Staci Grodin and family
Survivor Stories
December 12, 2024 • 3 Min

Gathering Information for the Right Treatment

Staci and Rich Grodin applied their medical information research skills when Rich was diagnosed with pancreatic cancer.

Clinical Trials
November 15, 2024 • 3 Min

Extensive Family History and Genetic Testing Leads to Early Detection

Sidney Levinson and his doctor were aware of his BRCA1/2 mutations so when an MRI was recommended for screening, Sidney did it.

Ryan Dwars and family
Survivor Stories
October 9, 2024 • 6 Min

Genetic Testing Guided My Treatment Plan

Ryan Dwars already knew there was pancreatic cancer in his family so when he was diagnosed he asked for genetic testing right away.

Pancreatic cancer patient Brandon Stone
Survivor Stories
August 30, 2024 • 6 Min

Don’t Let Doctors Tell You Nothing’s Wrong

After a long road to diagnosis Brandon Stone learned he has a BRCA2 genetic mutation that impacts his treatment.

Jeneen Genna "whipple Woman" and Dr. Elliot Newman
Survivor Stories
August 6, 2024 • 4 Min

Lucky to Find It Early

When Jeneen Genna did not feel well her doctor searched until they found pancreatic cancer. The BRCA2 mutation has her in a clinical trial.

Pancreatic cancer survivor Kim Bate and his wife
Survivor Stories
May 20, 2024 • 4 Min

The Sound of Hope

Kim Bate has a long family history of pancreatic cancer, losing his sister and twin brother to it. Then he received the same diagnosis.

Pancreatic cancer patient Deanna Burney
Survivor Stories
May 7, 2024 • 5 Min

Leaning into the Fight: My Battle with Pancreatic Cancer

Despite an extensive family history of pancreatic cancer, Deanna Burney’s doctors did not keep a close eye on her pancreatic cyst.

Pancreatic cancer patient Greg Jacobson and family
Survivor Stories
April 11, 2024 • 5 Min

Genetic Testing Changed My Chemo Protocol

Greg Jacobson’s family has an extensive history of cancer. After a pancreatic cancer diagnosis, genetic testing found the mutation for Lynch syndrome.

Pancreatic cancer patient Matthew Rosenblum, his partner Natalie, and their dog Monique
Survivor Stories
March 15, 2024 • 4 Min

Sometimes Things Get Worse Before They Get Better

Matthew Rosenblum thought his time was limited after a pancreatic cancer diagnosis at age 32, but he’s a BRCA2 carrier, which opened treatment options.

pancreatic cancer patient Daniel Miller
Survivor Stories
February 6, 2024 • 2 Min

I Wanted Immunotherapy!

When Daniel Miller was diagnosed with pancreatic cancer he knew he didn’t want chemotherapy—he wanted immunotherapy!

Acinar cell pancreatic cancer patient Paul Suntup
Survivor Stories
December 27, 2023 • 7 Min

A Long Journey That Began With Pancreatitis

Paul Suntup’s diagnosis of acinar cell pancreatic cancer was just the start of a long treatment journey, but he’s still here.

Podcast host and primary care physician Dr. Jon Hallberg
Disease Management
November 27, 2023 • 3 Min

Reaching Primary Care Providers Through Podcasts

Dr. Jon Hallberg leads a series on early detection of pancreatic cancer as part of his mission to reach providers through podcasts.

Pancreatic cancer survivor Kay Zedd Kesser
Survivor Stories
November 2, 2023 • 8 Min

A Family Tree Bent but Not Broken by Pancreatic Cancer

When Kay Zedd Kesser looks around her family tree, she sees pancreatic cancer everywhere. But screening saved Kay’s life.

pancreatic cancer patient Barbara Green in a hot pink wig
Survivor Stories
October 9, 2023 • 4 Min

Changing Course Midstream

Barbara Green wasn’t happy with her doctors, so she took the advice of her support group, was an advocate for herself, and changed doctors.

Andy Lyons
Survivor Stories
September 13, 2023 • 6 Min

A Cancer-Free Life 25 Years in the Making

Andy Lyons lost many family members to pancreatic cancer. With such a family history he knew to be proactive and get screened regularly.